Democratising Impact Measurement with Karōria Johns and Andrew Terris

In this episode of the International Foundation for Integrated Care's podcast series, 'Measuring the Impact of Integrated Care,' Niamh Lennox-Chhugani, is joined by Karōria Johns and Andrew Terris who discuss the integrated care in New Zealand from the perspectives of lived experience and system measurement.

Karōria Johns (Te Rarawa, Te Aupouri, Ngāpuhi Nui Tonu) is wahine Māori (a Māori woman) who has an extensive lived experience resulting from systemic and environmental challenges she has faced and from being 'disconnected' urban Māori. She brings her journey forward in a way that is friendly, open, accessible and understandable to individuals, organisations, collaboratives and communities seeking support to improve service delivery across a range of populations and locations.

Her current projects include the interconnected areas of health, community-led development and social service delivery, and this is currently concentrated in digital spaces. The inequities across these areas for marginalised populations are obvious globally.

Andrew works at the interface between information, process and policy.  He is a senior associate with IFIC and founding member of the Solutions team at IFIC.  He has worked in a number of projects at national levels including the European Commission sponsored IFIC project for integration of Health and Social Services for Estonia.  He was also the project lead for the national system level measures project for the Ministry of Health in New Zealand.  He has worked on process improvement projects ay the interface between hospital and community settings  in some of the UK Care trusts.  Andrew has been involved in a number of information and data and digital programmes of work and currently heads the regional collaborative Care project in the Northern region of New Zealand. He has a strong interest in the effective information flow and measurement and improvement of care across different settings.

 

Key Discussion Points

(01:00-08:45), Andrew speaks about the difficulty of measuring integrated care and the need for capturing both quantitative data and qualitative patient stories. He recounts his projects in Estonia and New Zealand, emphasizing the importance of seeing the patient journey alongside data to inform policy decisions. Terrace stresses the necessity of strength-based metrics and focuses on system and process measures over purely outcome-based ones.

(08:45-15:30) Karōria reflects on integrated care from a Maori perspective, highlighting the importance of data sovereignty and the significant role of the community in the data collection and analysis process. She emphasizes the need for true partnership and continuous feedback loops in working with the community, ensuring that their voices are authentically represented in the data.

(15:30-25:00) The discussion touches on challenges related to the current reliance on traditional, often deficit-focused metrics and the need for more inclusive measures that reflect community strengths and resilience. Both guests agree on the need to democratise the measurement process, making it more accessible and relevant to the communities served by integrated care.